| Description: |
How do parents make sense of the decision to have their child
initiate a trial of and continue stimulant medication for ADHD? Both
parents will meet with the principal investigator (when possible) for a
75 minute interview. During the interview each parent will be given an
opportunity to describe how they went about making the decision to have
their child take stimulant medications. Each parent will be encouraged
to describe details about each step in the decision-making process. With
permission the couple will be asked about who had more difficulty, what
unfolded, and how each parent's personal perspective fit into the
decision-making process. The interview will be recorded on video and/or
audio tape then the words will be transcribed and analyzed using
qualitative techniques. Later, the couple will be invited to participate
in a follow-up interview to review the analysis for accuracy and
feedback. The second interview will also be recorded and analyzed.
Portions of the transcript will be used in an article to be submitted
for publication. Options include interviewing the couple separately,
together, or both. Even video taping group interview(s) with several
families or the youth may be collected as data, if these formats are
mutually agreed upon and make sense to the families and the
investigator. If video clips are made, some may be used (with separate
and specific consent) in presentations for physicians in training and
perhaps for parents facing the same decision.
Criteria For Participation: Any couple or single parent with
experience in having stimulant medications offered for the treatment of
one or more children for ADHD. The parent(s) may have made the decision
in favor or against stimulant medication use. This study is open to 6-12
families living in the Chicago area, willing to be interviewed two times
and to sign the consent form.
The interviews may be held at an office in downtown Evanston, in Glen
Ellyn, or in the participant's home. The location of the interviews is
to be negotiated. Participants are asked to include both parents, if
possible. Over the course of collecting stories about each family's
experiences, new ideas about how to proceed with the study may evolve.
The structure of the study will be determined in collaboration between
the families and the investigator.
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